We had another visit at Vanderbilt on Tuesday with Dr Donahue and scheduled Ella's eye surgery for Jan 26th. The test he did Tuesday revealed that the condition is getting worse (which is normally what happens). When looking in the distance her eyes are almost 100% of the time floating outward. Close up she still has pretty good use of the eyes.
Her brain does not communicate correctly with her eyes, and there is nothing they can do about that part of it, but this surgery is to loosen her outside muscles on both eyes. By doing this the doctor hopes it will make it easier on the brain to hold the eyes into position. This will never permanently fix the problem (she will always have it) but hopefully it will lessen the number of times a day she has it...and best case scenario we would rarely notice it again nor would she have to go back in for follow up surgery. We dread so bad seeing our baby go through this. But, it has to be done, because she would eventually lose vision in her weakest eye (basically, the brain would get tired of struggling and give up on pulling the weaker eye back into position). Once the brain quit using that eye the vision would quickly deteriorate, and eventually cause blindness in that eye.
I will keep everyone updated as things get closer.
3 days ago
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